M.E. (Myalgic Encephalomyelitis), which is also known as Chronic Fatigue Syndrome (CFS) or Post-Viral Fatigue Syndrome, is a chronic, disabling illness, which can affect both adults and children. It is currently estimated that there are over 250,000 sufferers throughout the U.K., and around 25,000 of these are children.

After many years of controversy surrounding this illness, the World Health Organisation now classifies M.E. as a neurological illness. It is commonly triggered by a viral infection and anyone, regardless of age, sex or ethnic background can develop the illness.

The symptoms vary from person to person, but the most common ones are:
– Profound, lasting fatigue, which does not improve with rest
– Post Exertional Malaise (PEM)- exacerbation of symptoms after activity
– Severe joint and muscle pain
– Persistent headaches
– Impaired memory and concentration
– Sore throat, and/or enlarged lymph glands
– Abdominal pain and/or nausea
– Disturbed sleep pattern
– Poor temperature regulation
– Sensitivity to light and noise

There is no known cure for M.E.-CFS, although an early diagnosis, adequate rest particuarly in the early stages and effective advice on the management of the illness can significantly improve the chances of a full recovery. 

M.E.CFS can last between a few months and many years. Only twenty percent of sufferers are likely to make a full recovery in two to four years. Of the remaining group, around 60% improve significantly over time, whilst 20% become chronically and severely disabled.

ME-CFS has wide reaching consequences one of those most debilitating is on the ability to work. Most people affected by M.E. are unable to work for a period of time possibly permanently. Sadly, due to the ongoing misunderstanding and disbelief surrounding the illness, many sufferers do not receive the level of benefits they are entitled to, and endure financial hardship as a result.

The Covid virus (SARS-Cov-2) is know to cause in some a prolonged illness with significant overlap in many aspects to ME-CFS. We do not at the moment know if it carries the same outlook as ME-CFS. Post acute Covid syndrome as it is known, or more commonly “Long Covid” is a new illness and has fuelled an increase into research in these conditions. It has not yet had an impact on medical advice provided by medical institutions but the hope is it could do in the future.

Because of the very similar nature of Long Covid to ME-CFS and almost identical challenges it poses to sufferers we very much warmly welcome Long Covid sufferers to the group.

More information about this illness can be found on this NHS webpage about CFS/M.E. or on the websites of these UK-based M.E. charities.